Not good news for such a young child. My husband had "GBM" brain tumor given 12-18 months to live only lived 9 months so hard to see a grown man fall down in front of your eyes. I am hoping for the best for this little girl.

My heart goes out to this family, but clutching at straws for a miracle cure does no good. The doctors are, sadly, right. The family should focus on making the child's remaining time as wonderful as possible. I am critical of Kaiser's medical care since in my experience it puts cost before a patient's care; nevertheless, Kaiser's opinion in this case is correct.

I support you, mom, in your desperate efforts to save your daughter - trying herbs, oils, whatever. Such efforts may keep you strong while you endure the horror of your daughter's disease. If you cannot save her, you will let go when the time is right. Your struggles may serve yourself and your family in ways that may not be clear at this time. Blessings.

IMPORTANT...
Dear Marisa, please read about GcMAF.

"Using the Protocols, a big part of which is diet, stage 4 cancer patients usually start improving in the first week, often experiencing a 25% tumour reduction. Some, after 6 months become as cancer free as the rest of us, providing the patient carries out the protocols, the SWISS Protocol in the clinic, and the Home Protocol at home. If you have had chemotherapy it will take considerably longer. If you have been “over chemoed” and your blood / immune system counts are low, we will have to get those back up first." Web Link

To slow the advance, try a ketogenic diet and do not let her eat what hospitals serve:: Web Link
I'm praying for your daughter.

Ms. Martinez,
If you are trying everything possible, one thing I would add to the above list that is not likely to hurt and may help (it crosses the blood brain barrier) is IVIG. You are basically getting a lot of people's antibodies injected right into your blood stream, and there is some research on the use of it to reduce metastases in late-stage cancers. (Investigate which preparations are least likely to cause side effects, it makes a difference.) Cost is usually the biggest barrier, and cancer centers who provide it seem to charge the most to desperate patients, unfortunately.

It's not likely to be a cure-all but it could buy you some time. There was a flurry of research on IVIG in cancer in the 1990's, and then a worldwide shortage put an end to it (there are some people who have no immune system who need it to live - luckily, new production methods have helped the supply, among other things), and the research just never took off again, even though it is now used as the mainline treatment for at least one kind of cancer.

I personally feel that improvements resulting from use of IVIG should be followed through to their logical end, to understand cancer better or refine the use of it as an adjunct treatment. For now, though, again, it's unlikely to hurt and it could help buy you time.

Another - albeit controversial - alternative is hyperthermic treatment for cancer, which is available in Europe but not really here. The trouble is that raising the temperature of the brain is risky business. That's much more expensive and risky than the above.

Lastly, I don't know whether they have ramped up enough to help yet, but Cancer Commons might be a good resource for sifting through the cancer information overload and finding others with similar cancers/tumor genotypes who had success.

My heart and prayers go out to your family. I hope you are successful in your quest.